Bringing y’all up to speed


HELLO FRIENDS!!!! It has been YEARS since I was active in this world, and a lot has changed since you last read my blog posts! I am going to try to catch you up, as well as I possibly can!

I guess the first thing I should let you know is that I went through a pretty yucky split last spring/summer. Honestly, it had been a long time coming, and only one of us wanted to fight for it. As most may know, one person fighting for a relationship is never enough.

The kids and I dealt with a lot of emotions attached to feeling abandoned. I cannot legally say that we were abandoned, but we had issues and feelings related to abandonment and betrayal.

It was nasty, it was hard, it hurt, but at the end of the day, I THANK GOD IT HAPPENED TO US!!!!! After our court order was signed in August (we had seen the judge in July but adjustments had to be made to the final order before it was completed), I bought a house for the kids and I! This was all very exciting and fun! DAY ONE of the kids living in their new home, and it was like I had brand new children! They were no longer in the pains of instability and drowning in their feelings of abandonment. It was just SO RIGHT. Almost perfect, actually! A fresh start!

This piece of the story is out of order to keep the story above simple, but after the judge signed our court order in August, I immediately met and started dating JP (aka Joshua). We’re talking like a few days after the order was signed. But like I said, it had been over for years, and also we had an official court date back in July. Potato potato, but I just want to make it clear that I did not date until everything was final legally speaking.

It was a real whirlwind, I’m talking we were OBSESSED WITH EACH OTHER. Every single lunch break the man had, we would race down the road to spend lunch together! Inseparable is a good word for it.

He had it all! EXTREMELY FUNNY, insanely smart, great job (because he’s good at it), had his life in order with a home and a car to go with it. AND HE LOVED CATS. That was my first mistake with the last one, lack of kitty love. Lesson learned!!!! You’ve got to know how to pat the puss (shout out to Erika Jane) properly to be a truly good attentive man.

So here’s your timeline on that relationship:

Met in August 2016

Engaged in October 2016

Married in October 2016 by a pastor named Betsy 😂😂. Also, my new name is Bell Price!

Obtained a great custody arrangement for my step son, Cooper, who is now 21 months old in April 2016. Cooper was 15 months at the time the custody was set in place.

In May 2016 we tragically lost my sweet Otis, my kitty LOVER. He got outside and hasn’t been seen since. It was a huge heartbreak and loss to me. I grieved that kitty being gone like I would grieve a family member, and I NEVER thought I’d say that in my entire life. I am NOT one of those people who say “oh pets are just like kids and their lives are as important”. I’m just not. It’s ok if you are, but it was just never how I operated.

In June, we fostered a sweet, floppy, fluffy kitten named Millie, who we took in for forever. She was THE SWEETEST EVER!

In July, we were given a kitten. My friend found me this kitten INTENTIONALLY. We didn’t even really know each other at the time except via the internet, so I’m 900000% sure this was a god thing. He knew how heartbroken I was, and spoke to Stacy, who, in turn got me Gizmo. This situation was all to perfect for it to be not God sent. He’s the most unique kitty I’ve ever had, besides Oats. He is a Norwegian forest cat with extra toes, and our connection is INSANE. It’s not normal. You only get one kitty relationship like what we have in a lifetime. Codependent is an understatement with Gizmo and I. He helped fill the fuzzy otis shaped hole in my heart.

In late July, we found out that we were expecting Baby Price! We were Extremely excited!!! OVER THE MOON!!!!!

In early August, Harper started kindergarten!!!

This next one is rough. I’ve even gone ahead and made a blog post to document it, so that after you read this, you can hear the full story.

In late August, our little baby went to be with Jesus. I was not ok. I am now, but I was not then. Gizmo laid with me 100% of the time, and would lick my tears off my face when they’d pour out while he purred and snuggled my face. Millie, our kitty had been sick WEEKS prior to this with something our vet couldn’t figure out. Millie left to be with Jesus the night after our baby went to be with Jesus. She laid on my belly for hours while I was in labor like pain the days prior. It was like she left with the baby to watch after him/her/them.

In September, we went on our honeymoon in Mexico!

…and here we are in October, celebrating our one year anniversary! WOOHOO!!!

There you have it, people, you are up to speed!!!!

Xoxo

Bell

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McCune Albright Syndrome


I have been told by multiple people they’re concerned about my absenteeism on the blog lately. I just left you here. Cold turkey. No love note or anything. Sorry about that.

I’ve been very conflicted on whether to post on things that have been on my mind because it’s pretty heavy. I feel like now, I can clue everyone in on what’s been happening over here at Birmingham Bell.

As you saw- we have a new beautiful baby boy, John Tyler. He’s my buddy. He knows this too.

A month after we had my buddy there were a series of events that I wish on no parents.

A thursday evening I took Harper to go tinkle on her potty and noticed some brown discharge coming from her lady parts. It was a little gross, so I just made note to call her DR in the am when they open to see if this is normal or what they think about it. The world didn’t appear to be ending at the time I saw it.

Friday morning I go grab Harper from her crib and take her to my big potty to tinkle. She always “wipes” herself, then I’ll take her to the bed and really wipe her and put a diaper on. Well, I noticed a more pinkish discharge this time and that was my reminder to call the doc. I did leave her a message. I then went to go flush the toilet. In the toilet was BRIGHT RED clotty blood.

This is the part where I flip my $*%&. I call the dr and we both agree I need to load everyone up and head to their office asap. Keep in mind I have a newborn with me. This is a daunting task. John decides to meet me, and he showed up right in time. Both kids were screaming bloody murder and staff were buzzing around trying to help me out because they could see I was struggling.

Doctors always try to be optomistic when talking about your childs health. So ours said “it could be that she fell on top of a toy and nicked her lady parts, it could be a uti, it could be some other infection”… I was clear with her. It was none of those things. What I saw with my own eyes was menstral cycle blood. There’s nothing like it. THAT’S WHAT IT WAS. After a few tests and investigating further- AND seeing the picture I took of what was in our toilet, she agreed that I was correct. This was not a simple thing. It was huge. Our baby girl was bleeding. A lot.

We were sent to the children’s hospital for a series of tests and bloodwork. It was awful. It was basically 4 hours of John holding Harper down while she wailed.

We got home and made sure to spend extra time with her. We were both scared. She was still bleeding. I cried myself to sleep that night. Babies aren’t supposed to bleed.

We got the test results the next day. She had a cyst that had ruptured, but is still there. She also had elevated estrogen levels, and her uterus is visibly showing it’s been getting estrogen to it. None of this is good. She shouldn’t’ have estrogen in her uterus yet.

We flop back to a diagnosis we had discussed when she was just 4 weeks old. She has cafe au lait spots on her back. Only on the left side. This is a big indicator of 2 different syndromes. The first is neurofibromatosis, and the other is McCune Albright Syndrome. NF is the worst of the 2 because it affects the brain and parts of the brain that stimulate hormones. Tumors are common with this. The McCune albright syndrome is where we were leaning now because a symptom of that syndrome is precocious puberty. Although she hasn’t actually started a cycle yet, she is showing signs of precocious puberty in the form of too much estrogen. Armed with all the right symptoms for McCune Albright’s, our dr officially diagnosed her with it. I would cry every time I changed her diaper the week it happened.

It’s not ideal, but it’s better than the other diagnosis. We have to be extra careful because children with this syndrome have bones that will break easily because of the estrogen that weakens them. We have to always keep an eye out for symptoms of another cyst or a cycle. We avoided medications for now since it was a cyst and not a cycle. If she ever were to start a cycle very early she would be on medication until she is around 10. I don’t want that.

Thank goodness we are past that. Thank God for our doctor who kept an eye on this syndrome since Harper was 4 weeks old. Friends and family would tell me that our dr was just trying to scare me. They were wrong. I trusted her with everything I had, and she didn’t fail me.

Moms, trust your instincts. I knew something wasn’t right, but it wasn’t wrong enough for me to ask my dr to run tests on her at the time.

If you know anyone at all with McCune Albright Syndrom please have them email me at birminghambellblog@gmail.com I can’t really find anyone in real life that has this. It’s very rare 1 in 200 million I believe!

Pray that we keep getting the good answers and that none of the bad ones come our way.

XOXO

Bell

PS I almost deleted this whole thing because I have the hippocratic oath engrained in my head. Here I am sharing someone’s medical information! Shame on me!

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